“The ERN Board of Member States adopted updated guidance principles to frame collaboration between the ERNs and the industry, through a revision of its 2016 statement on the matter. It also adopted a new statement concerning recommendations and good practices to foster integration of the ERNs in national healthcare systems These important decisions were taken at the ERN Coordinators and Member State meetings that took place in Brussels on the 24 and 25 June. Finally, the Coordinators designated a new vice-Chair (Prof. Nicoline Hoogerbrugge, ERN GENTURIS), while Prof. Irene Mathijssen (ERN CRANIO) took over from Prof. Franz Schaefer (ERN ERKNET) as Chairperson.”
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