The Rare Disease Day 2021 video is available!
This year Rare Disease Day is taking place on 28 February and 6 heroes are featured in the campaign’s video:
- Angelina, from Australia, is living with an X-linked intellectual disability, microcephaly with pontine and cerebellar hypoplasia (MICPCH)
- Syafiq is Malayan and is living with Hypohidrotic ectodermal dysplasia (HED)
- Tristan is a fashion designer in the United States and lives with Sickle cell anemia
- Regina is enjoying her time in Brazil, in remission after having leiomyosarcoma
- Harvey is a 4 year old boy from Kenya who lives with Spinal muscular atrophy
- Jon-Kristian, who was born in Norway and lives with Osteogenesis imperfecta
Rare is many. Rare is strong. Rare is proud. Let’s spread the word!
Share the video throughout February on Facebook and Twitter using the hashtag #RareDiseaseDay to raise awareness for people living with a rare disease.