ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases
The ERN-RND Annual Meeting is taking place in Siena, Italy on the 17-19 June 2019. The coordinating members, clinicians and researchers from ERN-RND expert centres across Europe, ePAG patient representatives and industry representatives will attend. Please find the full meeting agenda here. Monday 17 June: Scientific symposium Poster session ePAG representatives meeting Tuesday 18 June: … Continue reading “17 – 19 June | ERN-RND Annual Meeting 2019”
A European Reference Network (ERN) is a virtual network comprised of healthcare professionals spread around Europe. Their objective is to tackle complex or rare diseases and conditions that necessitate highly specialised treatment and a concentration of knowledge and resources. Indeed, often a disease is so rare that expert knowledge is not available in the patient’s … Continue reading “About us”
The listed disease networks and study groups are external networks and groups, which are leaders in the field of research for these disease groups. ERN-RND’s work is based on and complimentary to the work being done by these networks.
The Disease Knowledge pages provide useful information about the different disease groups listed below that the ERN-RND covers. You can visit a Disease Knowledge page by clicking on the specific disease group under the “Disease Knowledge” menu above. Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs) Chorea & Huntington’s disease Dystonias, Neurodegeneration with Brain … Continue reading “DISEASE KNOWLEDGE”
You will find below the expert centres in rare neurological diseases across Europe that are part of the ERN-RND network. These RND expert centres have been approved by their respective national healthcare authorities and have been thoroughly assessed during the ERN application process. The network is currently composed of 64 full members and 4 Affiliated … Continue reading “Expert Centres”
