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- September 5, 2024 ERN-RND Newsletter - September 2024
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- December 16, 2021 ERN-RND Bulletin - December 2021
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- April 20, 2021 ERN-RND Newsletter - SPECIAL CPMS EDITION
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- December 14, 2020 Press release - UK healthcare professionals warn on detrimental effect of Brexit on people with rare diseases - press release
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- December 12, 2019 ERN-RND Newsletter - December 2019
- November 15, 2019 ERN-RND Newsletter - November 2019
- October 4, 2019 ERN-RND Newsletter - October 2019
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- July 16, 2019 ERN-RND Newsletter - July 2019
- June 18, 2019 ERN-RND Newsletter - June 2019
- May 20, 2019 ERN-RND Newsletter - May 2019
- April 16, 2019 ERN-RND Newsletter - April 2019
- March 18, 2019 ERN-RND Newsletter - March 2019
- February 11, 2019 ERN-RND Newsletter - Special Edition - Diagnostic Flowcharts
- January 10, 2019 ERN-RND Newsletter - January 2019
- November 28, 2018 ERN-RND Newsletter - November 2018
Latest News
- Hiring: Academic Assistant (80-100%)The Institute of Medical Genetics and Applied Genomics at the University Hospital Tübingen is looking … Continue reading “Hiring: Academic Assistant (80-100%)”
- New Study on MLDThe combination of newborn screening, care pathway and respective therapies led to a major breakthrough … Continue reading “New Study on MLD”
- Our Patient Journeys at EURORDIS Podcast “ERNs on Air”Patient Journeys are practical quick overviews that guide you through the stages of a rare … Continue reading “Our Patient Journeys at EURORDIS Podcast “ERNs on Air””
- Agenda for Annual Meeting 2024It is still possible to register to our ERN-RND annual meeting Care-RND24!
- Annual Meeting 2024on 10-11 October 2024 in Ljubljana, Slovenia.
- 100th ERN-RND Webinar!We are happy to announce that our 100th webinar on rare neurological diseases will be … Continue reading “100th ERN-RND Webinar!”
- EAN 2024: Come and visit us!We are looking forward to meeting you at this year’s EAN Congress: come and visit … Continue reading “EAN 2024: Come and visit us!”
- Recordings of ERN-RND Spring School 2024 onlineIf you missed a session of our Spring School “DBS in Dystonia” you can now … Continue reading “Recordings of ERN-RND Spring School 2024 online”
- New Publication on NGS for RNDRead now our newly published paper on “Quality assurance for next-generation sequencing diagnostics of rare … Continue reading “New Publication on NGS for RND”
- The ERN-RND ePAG visits the Medical University Innsbruck“Getting coordinated care is not a pipe-dream. It is a reality in Innsbruck and can … Continue reading “The ERN-RND ePAG visits the Medical University Innsbruck”