Newsletter

I agree to receiving emails from ERN-RND with information and news related to the European Reference Networks and its field of work.
(Please check your spam folder for the confirmation email.)

Latest News

• MEP Meeting on Brain Health and Neurological ConditionsFebruary 19, 2025
  “Knowledge and awareness are crucial in recognizing neurological conditions” as they often are invisible, even … Continue reading “MEP Meeting on Brain Health and Neurological Conditions”
• Solve-RD: Interview with coordinator Holm GraessnerFebruary 12, 2025
  Within the Solve-RD project, over 300 experts from different European countries and Canada re-analysed genome … Continue reading “Solve-RD: Interview with coordinator Holm Graessner”
• Holm Graessner becomes Lancet CommissionerFebruary 4, 2025
  Our coordinator Holm Graessner is now commissioner for the freshly launched Rare Diseases International Lancet … Continue reading “Holm Graessner becomes Lancet Commissioner”
• Meeting with MEPs for Rare Disease DayJanuary 27, 2025
  Rare Disease Day is coming up! Join us for shaping the future on policy for … Continue reading “Meeting with MEPs for Rare Disease Day”
• ERN-RND now on BlueSky!January 21, 2025
  You can now find us on BlueSky: @ern-rnd.bsky.social Did you know that BlueSky was conceptualized … Continue reading “ERN-RND now on BlueSky!”
• NGS: European Quality Assessment for ERN-RND centersJanuary 15, 2025
  Why is a quality assessment on European level important for next generation seuencing (NGS)? What … Continue reading “NGS: European Quality Assessment for ERN-RND centers”
• 6th ERN-RND Winter SchoolJanuary 8, 2025
  The European Pediatric Neurology Society (EPNS) and the European Reference Network for Rare Neurological Diseases … Continue reading “6th ERN-RND Winter School”
• Annual Meeting 2025November 27, 2024
  We are happy to announce that the ERN-RND annual meeting 2025 will be in the … Continue reading “Annual Meeting 2025”
• New Study on MLDSeptember 24, 2024
  The combination of newborn screening, care pathway and respective therapies led to a major breakthrough … Continue reading “New Study on MLD”
• Our Patient Journeys at EURORDIS Podcast “ERNs on Air”September 17, 2024
  Patient Journeys are practical quick overviews that guide you through the stages of a rare … Continue reading “Our Patient Journeys at EURORDIS Podcast “ERNs on Air””

Find us on X