Expert Centres

EXPERT CENTRES for Rare Neurological Diseases

You will find below the expert centres in rare neurological diseases across Europe that are part of the ERN-RND network. These RND expert centres have been approved by their respective national healthcare authorities and have been thoroughly assessed during the ERN application process.
The network is currently composed of 64 full members and 4 Affiliated Partners from 24 countries.

General information and contact details of the ERN-RND centres can be found at Orphanet, the portal for rare diseases and orphan drugs.

Full Members & Affiliated Partners

DiseaseCountryNameUnit
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaAustriaMedical University InnsbruckAdult/Pediatric
Atypical Parkinsonism and Genetic PDBelgiumAntwerp University HospitalAdult
Frontotemporal Dementia,LeukodystrophyBelgiumUniversity Hospital GhentAdult/Pediatric
Ataxia and Hereditary Spastic ParaplegiaBelgiumErasmus Hospital, Université libre de BruxellesAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Frontotemporal Dementia,Huntington's Disease and ChoreaBelgiumUniversity Hospital LeuvenAdult/Pediatric
Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron AccumulationBulgariaSt. Naum University Neurological Hospital, SofiaAdult
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyCroatiaUniversity Hospital Center ZagrebAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyCyprusCyprus Institute of Neurology and Genetics, EgkomiAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Frontotemporal DementiaCzech RepublicMotol University Hospital, PragueAdult/Pediatric
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaCzech RepublicSt. Anne´s University Hospital BrnoAdult/Pediatric
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Huntington's Disease and ChoreaCzech RepublicGeneral University Hospital PragueAdult/Pediatric
Frontotemporal Dementia,LeukodystrophyCzech RepublicThomayer University HospitalAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaDenmarkAarhus University HospitalAdult
Ataxia and Hereditary Spastic Paraplegia,Frontotemporal Dementia,Huntington's Disease and ChoreaDenmarkRigshospitalet University Hospital CopenhagenAdult
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyEstoniaTartu University Hospital (Affiliated Partner)Adult/Pediatric
Atypical Parkinsonism and Genetic PDFranceCHU - Reference Center for Rare Multiple System Atrophy, University Hospital BordeauxAdult
Ataxia and Hereditary Spastic Paraplegia,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron AccumulationFranceAPHP - Reference Centre for Rare Diseases 'Neurogenetics', Pitié-Salpêtrière Hospital, ParisAdult/Pediatric
Atypical Parkinsonism and Genetic PDFranceCHU - Reference Center for Rare Multiple System Atrophy diseases, University Hospital ToulouseAdult
Frontotemporal DementiaFranceAPHP - Reference centre for rare dementias, Pitié-Salpêtrière Hospital, ParisAdult
Huntington's Disease and ChoreaFranceAPHP - Reference centre for Huntington's disease, Henri-Mondor University Hospital, ParisAdult/Pediatric
LeukodystrophyFranceAPHP - Reference Centre for Leukodystrophies, Robert-Debré University Hospital, ParisAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Frontotemporal Dementia,LeukodystrophyFinlandFinland Consortium: University Hospitals in Oulu, Tampere and HelsinkiAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaGermanyRWTH - University Hospital AachenAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron AccumulationGermanyUniversity Hospital BonnAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyGermanyHannover Medical SchoolAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Huntington's Disease and ChoreaGermanyUniversity Hospital Schleswig-Holstein, LübeckAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyGermanyLudwig Maximilians University Hospitals, MunichAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyGermanyUniversity Hospital TübingenAdult/Pediatric
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaGermanyUniversity Hospital UlmAdult
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Huntington's Disease and ChoreaGermanyUniversity Hospital WürzburgAdult/Pediatric
Huntington's Disease and ChoreaGermanyCatholic Clinic BochumAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Frontotemporal Dementia,Huntington's Disease and ChoreaGreeceEginitio Hospital, National and Kapodistrian University of AthensAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyHungarySemmelweis University, BudapestAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaHungaryUniversity of PécsAdult/Pediatric
Ataxia and Hereditary Spastic ParaplegiaHungarySzent-Györgyi Albert Medical Center, SzegedAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PDIrelandIrish Consortium: Tallaght University Hospital and Children's Health IrelandAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaItalyIRCCS - Institute of Neurological Sciences of BolognaAdult
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyItalyIRCCS - Foundation of the Carlo Besta Neurological Institute, MilanAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Huntington's Disease and ChoreaItalyAOU - Federico II University Hospital, NaplesAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaItalyAOU - University Hospital PaduaAdult
Ataxia and Hereditary Spastic Paraplegia,LeukodystrophyItalyAOU - University Hospital PisaAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Huntington's Disease and Chorea,LeukodystrophyItalyPediatric Hospital Bambino Gesù, RomePediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyItalyAOU - University Hospital SienaAdult/Pediatric
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaItalyIRCCS - Humanitas Clinical Institute of Rozzano, MilanAdult
Huntington's Disease and ChoreaItalyAOU - Consortium Policlinic BariAdult
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyLatviaPauls Stradins Clinical University Hospital, Riga (Affiliated Partner)Adult
Huntington's Disease and ChoreaLithuaniaSantaros Klinikos, University Hospital VilniusAdult
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and Chorea,LeukodystrophyLuxembourgCHL - Luxembourg Hospital Center (Affiliated Partner)Adult
Huntington's Disease and ChoreaMaltaMater Dei Hospital, Msida (Affiliated Partner)Adult/Pediatric
LeukodystrophyNetherlandsAUMC - Amsterdam University Medical Center
Adult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Huntington's Disease and ChoreaNetherlandsUniversity Medical Center GroningenAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron AccumulationNetherlandsRadboud University Medical Centre, NijmegenAdult/Pediatric
Frontotemporal DementiaNetherlandsErasmus University Medical Center, RotterdamAdult
Huntington's Disease and ChoreaNetherlandsLeiden University Medical CenterPediatric
Huntington's Disease and ChoreaNetherlandsMaastricht University Medical CenterPediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron AccumulationPolandUniversity Hospital in KrakowAdult
Ataxia and Hereditary Spastic ParaplegiaPolandInstitute of Psychiatry and Neurology, WarsawAdult
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaSloveniaUniversity Medical Centre LjublijanaAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Huntington's Disease and ChoreaSpainHospital Clinic Barcelona and Sant Joan de Déu Hospital, BarcelonaAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaSpainVall d'Hebron University Hospital, BarcelonaAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal Dementia,Huntington's Disease and ChoreaSpainAsturias Central University Hospital, OviedoAdult
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Huntington's Disease and ChoreaSpainVirgen del Rocio University Hospital, SevillaAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Frontotemporal DementiaSpainMarques de Valdecilla University Hospital, SantanderAdult
Ataxia and Hereditary Spastic Paraplegia,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Frontotemporal DementiaSpainLa Paz University Hospital, MadridAdult
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron AccumulationSpainSan Carlos Clinical Hospital, MadridAdult
Atypical Parkinsonism and Genetic PD,Dystonia and Paroxysmal Disorders and Neurodegeneration with Brain Iron Accumulation,Huntington's Disease and ChoreaSpainGregorio Marañón General University Hospital, MadridAdult/Pediatric
Ataxia and Hereditary Spastic Paraplegia,Atypical Parkinsonism and Genetic PD,Huntington's Disease and ChoreaSwedenKarolinska University Hospital, StockholmAdult/Pediatric
Huntington's Disease and ChoreaSwedenSahlgrenska University Hospital, GothenburgAdult

How to contact ERN-RND expert centres

You will find the contact details of our ERN-RND Expert Centres here.

Supporting partners

  • Bulgaria
    • Huntington’s Disease and Chorea; UMHAT Alexandrovska Hospital; Sofia; Bulgaria; Sashka Zhelyazkova: email | phone
  • France
    • Atypical Parkinsonism and Genetic PD; Frontotemporal Dementia; CHU de Lille; France; Thibaud Lebouvier: email | phone
    • Dystonia, Paroxysmal Disorders and Neurodegeneration with Brain Ion Accumulation; Huntington’s Disease and Chorea; APHP – Hôpital Armand Trousseau – Paris; France; Claudia Ravelli: email | phone
    • Dystonia, Paroxysmal Disorders and Neurodegeneration with Brain Ion Accumulation; Huntington’s Disease and Chorea; APHP – Hôpital Armand Trousseau – Paris; France; Diane Doummar: email | phone
  • Germany
    • Ataxia and Hereditary Spastic Paraplegia; University Hospital of Heidelberg; Germany | Department for Neurodegeneration; Rebecca Schüle: email | phone
    • Ataxia and Hereditary Spastic Paraplegia; Leukodystrophy; University of Leipzig Medical Center; Germany; Wolfgang Köhler: email | phone
    • Ataxia and Hereditary Spastic Paraplegia; Leukodystrophy; University of Leipzig Medical Center; Germany; Caroline Bergner: email | phone
    • Atypical Parkinsonism and Genetic PD; Frontotemporal Dementia; University Medical Center Rostock; Germany; Andreas Hermann: email | phone
    • Dystonia, Paroxysmal Disorders and Neurodegeneration with Brain Ion Accumulation; University Hospital of Köln; Germany; Anne Koy: email | phone
    • Huntington’s Disease and Chorea; University Medical Center Rostock; Germany | Translational Neurodegeneration Section “Albrecht Kossel”; Kevin Peikert: email

Is your hospital interested to collaborate with ERN-RND? If it is located in a European country not yet represented within ERN-RND, you can apply for your hospital to become a supporting partner.

For more information, please contact Carola Reinhard.

Videos from our members

In 2021, some of our members recorded a video to introduce themselves. You can find these members named on the map below. Click on the city names to view the videos. The locations of our other members are also included on this map.

If you want to be included, send us your introductory video!

Overview of all ERNs

ERN-RND is one of 24 European Reference Networks (ERNs). We have strong collaborations with the other two Neuro-ERNs EURO-NMD and epiCARE.

If you want to find out more about the other ERNs find them all listed here with a link to their website.