This Disease Knowledge Page provides reference information on care of atypical parkinsonism: multiple system atrophy and progressive supranuclear palsy.
Information and knowledge that has been developed or endorsed by ERN-RND is found in the blue boxes.
ERN-RND centres for MSA and PSP
Educational webinars
- Genetic forms of parkinson's disease by Thomas Gasser
- Recognizing atypical parkinsonism by Wassilios Meissner
- Respiratory physiotherapy in parkinson's plus syndromes by Jorik Nonnekes & Martin Srp
- Progressive supranuclear palsy - update on diagnostics, biomarkers and therapies by Günter Höglinger
Care Standards - Clinical Rating Scales
Genetic PD:
MDS-UPDRS: Clinical rating scales for Genetic Parkinson's Disease (Updated 2024)
MSA:
UMSARS: Clinical rating scales for Multiple System Atrophy (Updated 2024)
PSP:
PSPRS: Clinical rating scales for Progressive Supranuclear Palsy (Updated 2024)
Patient organisations
Patient Registries to which ERN-RND members contribute
Clinical studies & trials
Patient information
Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.