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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Patient information – Frontotemporal dementia – Adult

Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.

Multiple languages:

  • Disease specific patient education handouts by the Movement Disorders Society

German language:

  • DESCRIBE-FTD – Klinische Registerstudie zu Frontotemporaler Demenz by Deutsches Zentrum für Neurodegenerative Erkrankungen e. V. (DZNE)

     


Webinar Schedule

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ERN-RND

@ern-rnd.bsky.social

188 Followers 92 Following 270 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

Last updated 10 minutes ago

  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 6 days

    ERN-RND Annual Meeting 2026 - Registration open

    on 10-11 October 2024 in Ljubljana,...
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 6 days

    Learn more about registries in Rare Neurological Diseases in our Scientific #Symposium on October 10 - online and free of charge!

    For programme and registration click here: www.ern-rnd.eu/wp-content/u...

    #registry #RND #RareNeurologicalDisease
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 3 weeks

    Stay informed on the latest developments in rare neurological diseases by subscribing to our #newsletter: www.ern-rnd.eu/mailpoet-ema...
    With updates on standards of care, clinical decision support tools, educational webinars, opportunities to participate in research and initiatives, events.
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 3 weeks

    On #WorldBrainDay2026 we want to reflect on the remarkable progress that has been made in the field of Genetics. From small but meaningful advances to groundbreaking scientific breakthroughs, every step has brought us closer to a better future for people living with RND. youtu.be/hLP9lN4SULo?...
    ❤️ 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 weeks

    Interested in Registries for Rare Neurological Diseases? Then join our Scientific #Symposium on October 10 - online and free of charge!

    To see the programme and to register click here: www.ern-rnd.eu/wp-content/u...

    #registry #RND #RareNeurologicalDisease #RareNeurology #ERNs
    🔄 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 weeks

    Interested in Registries for Rare Neurological Diseases? Then join our Scientific #Symposium on October 10 - online and free of charge!

    To see the programme and to register click here: www.ern-rnd.eu/wp-content/u...

    #registry #RND #RareNeurologicalDisease #RareNeurology #ERNs
    🔄 1
  • View post by ERN-RND on Bluesky

    ERN-RND @ern-rnd.bsky.social 4 weeks

    Become an expert in Ataxias and HSPs with our UEMS certified postgraduate curriculum in the competency "Rare Neurological Diseases." Hosted at eanCampus

    Interested? Visit our website for more information: lnkd.in/eKdY5jpf

    #Ataxia #HSP #webinar #RND
    🔄 1
Last updated 10 minutes ago

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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