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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

Members Area
  • Home
  • About us
    • What is an ERN
    • Cross border healthcare
    • What is ERN-RND
    • Objectives of ERN-RND
    • Diseases Groups Covered
    • ERN-RND coordinators
    • ERN-RND coordination office
    • ERN-RND board
    • Patient advocates
    • Work Packages
    • Monitoring
    • Publications Acknowledging ERN-RND
  • Expert Centres
    • … for rare neurological diseases
    • Full members and affiliated partners
    • How to contact expert centres
    • Supporting partners
    • Videos from our members
    • Overview ERNs
  • Online case discussion with CPMS
    • What is the CPMS
    • Who can use it
    • How to use it
    • MLD Treatment eligibility panel
    • CPMS Helpdesk
    • Neuroradiology Expert Advice Panel
    • Videos
    • Downloads
    • Websites
  • Disease Knowledge
    • Cerebellar Ataxia & Hereditary Spastic Paraplegias (HSPs)
    • Chorea & Huntington’s disease
    • Dystonias, NBIA and Paroxysmal Disorders
    • Frontotemporal dementia
    • Leukodystrophies
    • Atypical Parkinsonism: MSA, PSP & Genetic Parkinson’s Disease
    • ERN-RND Patient Journeys
  • Education & Training
    • Webinars
    • Past webinars
    • Spring School
    • EJP RD funded training – Research on RD
  • ERN-RND Registry
    • ERN-RND registry objectives
    • Disease Groups covered
    • Data Submission
    • Data Access
    • Contact
  • Collab­ora­tions
    • EJP RD
      • EJP RD in a nutshell
      • What is EJP RD?
      • EJP RD mission & goals
      • EJP RD & ERNs
    • Solve-RD
      • What is Solve-RD?
      • Main Objectives
      • Implementation Steps
      • Analysis
    • Value of Treatment (VoT) project
      • VoT project coordinator
      • Objectives of the VoT project
      • ERN-RND in VoT2
      • Academic partners in VoT2
      • Further reading
  • News & Events
    • News
    • Events
    • Newsletter
    • Meet the members
  • Contact us
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Patient organisations – NBIA

  • NBIA Canada
  • Association International DNAI (France)
  • Hoffnungsbaum e.V. (Germany)
  • NBIA Hungary
  • Associzione Italiana Sindromi Neurodegenerative Da Accumulo Di Ferro (Aisnaf onlus)
  • Stichting ljzersterk (Netherlands)
  • Asociación Española de pacientes con enfermedades neurodegenerativas con acumulación de hierro cerebral (ENACH)
  • NBIA Suisse
  • NBIA Disorders Association (USA)

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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