Past Events 2021 – Page 2 – ERN-RND | European Reference Network on Rare Neurological Diseases

7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations”

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4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias”

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20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea”

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12-15 April 2021 | International BNA2021 Festival of Neuroscience

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13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias”

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26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?”

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23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity”

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23 March 2021 | 6ème Journée Nationale BRAIN-TEAM

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15-21 March 2021 | Brain Awareness Week

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13-14 March 2021 | HDYO’s International Young Adult Virtual Congress

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1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”

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28 February 2021 | Rare Disease Day

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24 February 2021 | EURORDIS Black Pearl Awards

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26 February 2021 | Tag der Seltenen Erkrankungen in Mainz

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23 February 2021 | Rare 2030 Final Policy Conference

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23 February 2021 | ERN-RND webinar “Improving care for rare disease patients in Europe – Rare Disease Day 2021”

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15 February 2021 | Online workshop “Good practice nelle Reti di Riferimento Europee”

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9 February 2021 | ERN-RND webinar “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world”

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2 February 2021 | ERN-RND webinar “Genetic dystonia and treatment”

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2 February 2021 | EJP RD webinar on Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease”

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28 January 2021 | Webinar “COVID-19 and Rare Diseases”

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26 January 2021 | ERN-RND webinar “Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies”

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25 January 2021 | EJP RD Information/Networking event

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18 January 2021 | International AHC (Alternating Hemiplegia of Childhood) Day

Continue reading “18 January 2021 | International AHC (Alternating Hemiplegia of Childhood) Day”

13-15 January 2021 | IRDiRC Conference and RE(ACT) Congress

Continue reading “13-15 January 2021 | IRDiRC Conference and RE(ACT) Congress”

Category: Past Events 2021

27-28 May 2021 | ERICA kick-off meeting & first General Assembly

18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)

7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations”

4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias”

20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea”

12-15 April 2021 | International BNA2021 Festival of Neuroscience

13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias”

26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?”

Continue reading “26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?””

23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity”

23 March 2021 | 6ème Journée Nationale BRAIN-TEAM

15-21 March 2021 | Brain Awareness Week

13-14 March 2021 | HDYO’s International Young Adult Virtual Congress

1-2 March 2021 | 1st International Conference on Rare Diseases “Building a Pathway from Diagnosis to Access”

28 February 2021 | Rare Disease Day

24 February 2021 | EURORDIS Black Pearl Awards

26 February 2021 | Tag der Seltenen Erkrankungen in Mainz

23 February 2021 | Rare 2030 Final Policy Conference

23 February 2021 | ERN-RND webinar “Improving care for rare disease patients in Europe – Rare Disease Day 2021”

15 February 2021 | Online workshop “Good practice nelle Reti di Riferimento Europee”

9 February 2021 | ERN-RND webinar “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world”

2 February 2021 | ERN-RND webinar “Genetic dystonia and treatment”

2 February 2021 | EJP RD webinar on Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease”

28 January 2021 | Webinar “COVID-19 and Rare Diseases”

26 January 2021 | ERN-RND webinar “Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies”

25 January 2021 | EJP RD Information/Networking event

18 January 2021 | International AHC (Alternating Hemiplegia of Childhood) Day

13-15 January 2021 | IRDiRC Conference and RE(ACT) Congress