30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies” Continue reading “30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies””
30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia” Continue reading “30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia””
18 June 2020 | Webinar “A data strategy for the European Reference Networks” Continue reading “18 June 2020 | Webinar “A data strategy for the European Reference Networks””
18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation” Continue reading “18 June 2020 | ERN-RND webinar “Goal setting and outcome measures of interventions in pediatric rehabilitation””
15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting Continue reading “15-16-17 June 2020 | ERN-RND (virtual) Annual Meeting”
16 June 2020 | Webinar “Advancing the rare disease research agenda” Continue reading “16 June 2020 | Webinar “Advancing the rare disease research agenda””
6-9 June 2020 | ESHG 2020.2 – Live in your living room Continue reading “6-9 June 2020 | ESHG 2020.2 – Live in your living room”
9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS Continue reading “9 June 2020 | Webinar “The impact of COVID 19 for people living with a Rare Disease” by EC & EURORDIS”
23-26 May 2020 | 6th (Virtual) Congress of the European Academy of Neurology Continue reading “23-26 May 2020 | 6th (Virtual) Congress of the European Academy of Neurology”
26 May 2020 | ERN-RND webinar “Primary progressive aphasia subtyping in clinical practice” Continue reading “26 May 2020 | ERN-RND webinar “Primary progressive aphasia subtyping in clinical practice””
14-15 May 2020 | 10th European Conference on Rare Diseases & Orphan Products (ECRD2020) Continue reading “14-15 May 2020 | 10th European Conference on Rare Diseases & Orphan Products (ECRD2020)”
12 May 2020 | ERN-RND webinar “paroxysmal dyskinesias: update on clinical and genetic aspects” Continue reading “12 May 2020 | ERN-RND webinar “paroxysmal dyskinesias: update on clinical and genetic aspects””
29 April | Share4Rare webinar: “State of the Art of Rare Disease Activities in Europe” Continue reading “29 April | Share4Rare webinar: “State of the Art of Rare Disease Activities in Europe””
27-29 April 2020 | ‘Training on strategies to foster solutions of undiagnosed rare disease cases’ Continue reading “27-29 April 2020 | ‘Training on strategies to foster solutions of undiagnosed rare disease cases’”
23 April 2020 | EURO-NMD webinar “exercise & NMD” Continue reading “23 April 2020 | EURO-NMD webinar “exercise & NMD””
21 April 2020 | ERN-RND webinar “hypomyelination” Continue reading “21 April 2020 | ERN-RND webinar “hypomyelination””
14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism” Continue reading “14 April 2020 | ERN-RND webinar “recognizing atypical parkinsonism””
6-7 April 2020 | SCA Global Conference CANCELLED Continue reading “6-7 April 2020 | SCA Global Conference CANCELLED”
6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination” Continue reading “6 April 2020 | EHA & ERN-RND webinar: “Huntington’s disease and the Covid-19 pandemic – a difficult combination””
28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED Continue reading “28-29 March 2020 | European Conference on the Diffusion of Genomic Medicine CANCELLED”
25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes Continue reading “25-27 March 2020 | 10th International Meeting on Neuroacanthocytosis Syndromes”
21 April 2020 | ERN-RND webinar “hypomyelination” (paediatric focus) Continue reading “21 April 2020 | ERN-RND webinar “hypomyelination” (paediatric focus)”
17 March 2020 | ERN-RND webinar “X-linked adrenoleukodystrophy” (adult/paediatric focus) Continue reading “17 March 2020 | ERN-RND webinar “X-linked adrenoleukodystrophy” (adult/paediatric focus)”
11-14 March 2020 | RE(ACT) Congress & IRDiRC Conference Continue reading “11-14 March 2020 | RE(ACT) Congress & IRDiRC Conference”
3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED Continue reading “3-6 March 2020 | NAF’s Ataxia Investigators meeting – CANCELLED”
3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia” Continue reading “3 March 2020 | ERN-RND webinar “ultrasound diagnostics for cervical dystonia””
2-3 March 2020 | ARCA Global Conference – CANCELLED Continue reading “2-3 March 2020 | ARCA Global Conference – CANCELLED”
29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen Continue reading “29 February 2020 | Süddeutscher Fachtag der Seltenen Erkrankungen”