Continue reading “5 November | ERN-RND webinar “Clinical Features of Ataxia””
Category: Past Events
29-30 October | Organising & maximizing rare disease biological sample data in biobanks
23-25 October | Training course: Quality assurance, variant interpretation and data management in the NGS diagnostics era
24 October | WEBINAR: “CPMS upcoming changes”
24 October | WEBINAR: “Diagnostic imaging in NMD: the basics”
3-4 October | 8th Annual Symposium on ATP1A3 in Disease
3 October | World MSA Day
Dystonia Awareness Month | September 2019
30 September | EU Health Programme High Level Conference
26-27 September | Nationale Konferenz zu Seltenen Erkrankungen (NAKSE)
23-27 September | International Summer School on Rare Disease Registries and FAIRification of Data
22-26 September | International Congress of Parkinson’s Disease & Movement Disorders
25 September | International Ataxia Awareness Day
17-21 September | 13th European Paediatric Neurology Society (EPNS) Congress
20-21 September | 6th International Meeting on Spastic Paraparesis and Ataxia
16 September | Rare disease perspectives in Central – Eastern Europe
22 July 2019 | World Brain Day
10-12 July | 3rd EAN Task Force for Rare Neurological Diseases Teaching Course
29 June – 2 July 2019 | 5th Congress of the European Academy of Neurology
29 June 2019 | Dystonia Today – special session at the EAN Congress 2019
29 June | Rare Neurological Diseases for Understanding nervous system functions & dysfunctions, 5th Congress of the EAN 2019
26 June | EJP-RD WP17 focus group meeting
17 – 19 June | ERN-RND Annual Meeting 2019
The ERN-RND Annual Meeting is taking place in Siena, Italy on the 17-19 June 2019. The coordinating members, clinicians and researchers from ERN-RND expert centres across Europe, ePAG patient representatives and industry representatives will attend.
Please find the full meeting agenda here.
Monday 17 June:
- Scientific symposium
- Poster session
- ePAG representatives meeting
Tuesday 18 June:
Annual meeting
- ERN-RND overview
- CPMS live case discussion
- CPMS hands-on sessions
- Results, work for years 3-5 & brainstorming for next 5 years
- Disease group sessions Frontotemporal Dementia, Choreas & Huntington’s Disease, Atypical Parkinsonian Syndromes, Leukodystrophies, Dystonias/Paroxysmal Disorders (non-epiletical ones)/Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxias & Hereditary Spastic Paraplegias
Wednesday 19 June:
Board meeting
12 June 2019 | IMI Stakeholder Forum 2019
May 2019 | Huntington’s Disease Awareness Month
May is Huntington’s Disease Awareness Month.
Raise awareness by lighting up your home, sharing pictures and stories on social media. You can use the hashtag #LightItUp4HD .
You can find more information on the European Huntington Association webpage’s here.
