Past Events – Page 4 – ERN-RND | European Reference Network on Rare Neurological Diseases

9 February 2021 | ERN-RND webinar “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world”

Continue reading “9 February 2021 | ERN-RND webinar “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world””

2 February 2021 | ERN-RND webinar “Genetic dystonia and treatment”

Continue reading “2 February 2021 | ERN-RND webinar “Genetic dystonia and treatment””

2 February 2021 | EJP RD webinar on Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease”

Continue reading “2 February 2021 | EJP RD webinar on Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease””

28 January 2021 | Webinar “COVID-19 and Rare Diseases”

Continue reading “28 January 2021 | Webinar “COVID-19 and Rare Diseases””

26 January 2021 | ERN-RND webinar “Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies”

Continue reading “26 January 2021 | ERN-RND webinar “Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies””

25 January 2021 | EJP RD Information/Networking event

Continue reading “25 January 2021 | EJP RD Information/Networking event”

18 January 2021 | International AHC (Alternating Hemiplegia of Childhood) Day

Continue reading “18 January 2021 | International AHC (Alternating Hemiplegia of Childhood) Day”

13-15 January 2021 | IRDiRC Conference and RE(ACT) Congress

Continue reading “13-15 January 2021 | IRDiRC Conference and RE(ACT) Congress”

3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients

Continue reading “3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients”

3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?”

Continue reading “3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?””

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

Continue reading “1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide””

24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “

Continue reading “24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “”

24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM

Continue reading “24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM”

19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update”

Continue reading “19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update””

18 November 2020 | ERN-RND virtual Board Meeting (fall)

Continue reading “18 November 2020 | ERN-RND virtual Board Meeting (fall)”

10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice”

Continue reading “10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice””

3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias”

Continue reading “3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias””

29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching”

Continue reading “29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching””

19-21 October 2020 | SCA & ARCA Global Conference

Continue reading “19-21 October 2020 | SCA & ARCA Global Conference”

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

Continue reading “13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea””

12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE

Continue reading “12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE”

7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation

Continue reading “7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation”

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

Continue reading “6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies””

September 2020 | Dystonia Awareness Month

Continue reading “September 2020 | Dystonia Awareness Month”

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

Continue reading “29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?””

25 September | International Ataxia Awareness Day (IAAW)

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

Continue reading “17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm””

12-16 September 2020 | MDS Virtual Congress

Continue reading “12-16 September 2020 | MDS Virtual Congress”

Category: Past Events

23 February 2021 | Rare 2030 Final Policy Conference

15 February 2021 | Online workshop “Good practice nelle Reti di Riferimento Europee”

9 February 2021 | ERN-RND webinar “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world”

2 February 2021 | ERN-RND webinar “Genetic dystonia and treatment”

2 February 2021 | EJP RD webinar on Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease”

28 January 2021 | Webinar “COVID-19 and Rare Diseases”

26 January 2021 | ERN-RND webinar “Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies”

25 January 2021 | EJP RD Information/Networking event

18 January 2021 | International AHC (Alternating Hemiplegia of Childhood) Day

13-15 January 2021 | IRDiRC Conference and RE(ACT) Congress

3 December 2020 | Round table: providing better access to care and treatment for HD & RND patients

3 December 2020 | Dystonia Europe webinar “Botulinum toxin therapy of dystonia: what is new?”

1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide”

24 November 2020 | ERN-RND webinar “Development of Sara-home: a novel assessment tool for patients with ataxia “

24 November 2020 | Annual meeting for patient organisations BRAIN-TEAM

19 November 2020 | EURO-NMD webinar “Congenital Myasthenia Syndrome – an update”

18 November 2020 | ERN-RND virtual Board Meeting (fall)

10 November 2020 | ERN-RND webinar “Rehabilitation in ataxia: current evidence & practice”

3 November 2020 | ERN-RND webinar “Non-invasive stimulation for ataxias”

29 October 2020 | EURO-NMD webinar “Personalized care for patients with ALS: ALS Home monitoring & coaching”

19-21 October 2020 | SCA & ARCA Global Conference

13 October 2020 | ERN-RND webinar “diagnostic algorithm for childhood onset chorea”

12 October 2020 | EJP RD Selection of Topics for Research Training Workshops call DEADLINE

7-10 0ctober 2020 | 11th World Congress of Neurorehabilitation

6 October 2020 | ERN-RND webinar “Treatment of spasticity in HSP and leukodystrophies”

September 2020 | Dystonia Awareness Month

29 September 2020 | ERN-RND webinar “How can we develop and implement evidence based rehabilitation in rare disorders?”

25 September | International Ataxia Awareness Day (IAAW)

17 September 2020 | EURO-NMD webinar “the basics of genetic approaches for NMDs – using DMD as a paradigm”

12-16 September 2020 | MDS Virtual Congress