News – Page 9 – ERN-RND | European Reference Network on Rare Neurological Diseases

Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay

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Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay

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Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay

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ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment

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ERN-RND short fellowship experience in Tübingen, Germany

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Full report – 4th European Reference Networks Conference

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New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research

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Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases

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New #EUProtects video released by the European Commission

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Poster: “CPMS use cases in ERN-RND”

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Poster: ERN-RND – Survey research priorities

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Summary report – 4th Conference on European Reference Networks

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New ERN video and flyer for patients and healthcare professionals

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Executive Summary – 9th European Conference on Rare Diseases and Orphan Products

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ERN-RND Fellowship experience in Tübingen, Germany

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ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)

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ERN-RND Fellowship

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ERN-RND Annual Meeting 2018

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Solve-RD project

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MoU signed between ERN-RND & MDS-ES

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@ERN_RND is on Twitter!

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1st ERN-RND Winter School

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