News – Page 7 – ERN-RND | European Reference Network on Rare Neurological Diseases

Solve-RD brokerage call open

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COVID-19: EURORDIS urges immediate action and proposes concrete solutions for rare disease patients

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Webinar on 6 April: “Huntington’s Disease & COVID-19 pandemic – a difficult combination”

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European Commission launches COVID-19 Clinical Management Support System

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EAN Congress 2020 moves online

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ECRD 2020 moves online

Continue reading “ECRD 2020 moves online”

EFNA launches survey on stigma & neurological conditions

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It’s #BrainAwarenessWeek 2020

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European Reference Networks are 3 years old

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SCA Global Conference 2020 CANCELLED

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New EHA video on ERN-RND

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ARCA Global Conference 2020 CANCELLED

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ERN-RND Patient advocates meeting report, 30 January 2020

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ERN-RND Survey: “Research Priorities” for patients

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EJP RD calls for funding – ERNs only

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Successful ERN-RND Registry Application!

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New #RareDiseaseDay 2020 poster available!

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ERN-RND welcomes new affiliated partners

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New EJP RD call: Networking Support Scheme is open!

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“ERNs in a crucial phase of enlargement”

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ERN Newsletter is out!

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Euro-ataxia publishes patient charter

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EAN 2020 abstract submission is open!

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#BrainLifeGoals photo competition, submit a photograph!

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European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

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100 days to go until Rare Disease Day 2020!

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SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

Call to apply to join an ERN is open until 30 November 2019

Continue reading “Call to apply to join an ERN is open until 30 November 2019”

First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

Continue reading “First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.”

French MSA patient organisation ARAMISE launches fundraising campaign

Continue reading “French MSA patient organisation ARAMISE launches fundraising campaign”