News 2021 – Page 2 – ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND communication survey

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Research article: “Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases”

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Article: “European Reference Networks: challenges and opportunities”

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Survey: educational needs in rare neurological diseases in Europe

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FUNDING – EJP RD / ERN Research Mobility Fellowship call open

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EJP RD – ERN Research Mobility Fellowship funding opportunity

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ERICA project kick-off

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EJP RD Rare Disease Day Video

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Health Awareness Rare Disease Day 2021 campaign

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New leaflet for patients on Muscle tightness & stiffness – “spasticity” in ataxia

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ERN-RND recorded webinar: “Improving care for rare disease patients in Europe – Rare Disease Day 2021”

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“Der Weg zur europaweiten Zusammenarbeit” von Holm Graessner

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ERN-RND recorded webinar: “Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world”

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ERN-RND recorded webinar: “Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies”

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Research article: “Novel instructionless eye tracking tasks identify emotion recognition deficits in frontotemporal dementia”

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Case report: “Video Case Report: Action Myoclonus After CAR-T Cell Therapy”

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Rare Disease Day 2021 video

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New ERN-RND project manager

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New ERN-RND CPMS helpdesk

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Brief report: “Development of SARAhome, a New Video‐Based Tool for the Assessment of Ataxia at Home”

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ERN-RND February 2021 Newsletter

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EJP RD research training workshop – call open

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EURORDIS Leadership School – applications open

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Review article: “The European Reference Network for Rare Neurological Diseases”

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Research article: “Lower urinary tract and bowel dysfunction in spinocerebellar ataxias”

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