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ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: News 2020

SCA Global Conference 2020 CANCELLED

Continue reading “SCA Global Conference 2020 CANCELLED”

Author ERN-RNDPosted on March 3, 2020August 13, 2024Categories News 2020

New EHA video on ERN-RND

Continue reading “New EHA video on ERN-RND”

Author ERN-RNDPosted on March 2, 2020August 13, 2024Categories News 2020

ARCA Global Conference 2020 CANCELLED

Continue reading “ARCA Global Conference 2020 CANCELLED”

Author ERN-RNDPosted on March 2, 2020August 13, 2024Categories News 2020

ERN-RND Patient advocates meeting report, 30 January 2020

Continue reading “ERN-RND Patient advocates meeting report, 30 January 2020”

Author ERN-RNDPosted on March 2, 2020August 13, 2024Categories News 2020

ERN-RND Survey: “Research Priorities” for patients

Continue reading “ERN-RND Survey: “Research Priorities” for patients”

Author ERN-RNDPosted on February 26, 2020August 13, 2024Categories News 2020

EJP RD calls for funding – ERNs only

Continue reading “EJP RD calls for funding – ERNs only”

Author ERN-RNDPosted on February 5, 2020August 13, 2024Categories News 2020

Successful ERN-RND Registry Application!

Continue reading “Successful ERN-RND Registry Application!”

Author ERN-RNDPosted on January 20, 2020August 13, 2024Categories News 2020

New #RareDiseaseDay 2020 poster available!

Continue reading “New #RareDiseaseDay 2020 poster available!”

Author ERN-RNDPosted on January 8, 2020August 13, 2024Categories News 2020

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Webinar Schedule

Latest News

Annual Meeting 2025
November 27, 2024
We are happy to announce that the ERN-RND annual meeting 2025 will be in the Tutzing Castle (close to Munich) …read more »
New Study on MLD
September 24, 2024
The combination of newborn screening, care pathway and respective therapies led to a major breakthrough for rare diseases in this …read more »
Our Patient Journeys at EURORDIS Podcast “ERNs on Air”
September 17, 2024
Patient Journeys are practical quick overviews that guide you through the stages of a rare neurological disease. But do you …read more »

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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