Dystonia Europe survey – please participate Continue reading “Dystonia Europe survey – please participate”
EAN interviews ERN-RND coordinator Holm Graessner Continue reading “EAN interviews ERN-RND coordinator Holm Graessner”
Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released Continue reading “Brain, Mind and Pain #BookofEvidence for 2019-2024 EU mandate released”
The ERNs are getting ready for the challenges of enlarging the ERNs Continue reading “The ERNs are getting ready for the challenges of enlarging the ERNs”
Call for Proposals – Grant Opportunity for BPAN and MPAN research Continue reading “Call for Proposals – Grant Opportunity for BPAN and MPAN research”
18 February 2019 | Trial readiness and registries in RND workshop report Continue reading “18 February 2019 | Trial readiness and registries in RND workshop report”
Rare Disease Day: a new EU platform to support better diagnosis and treatment Continue reading “Rare Disease Day: a new EU platform to support better diagnosis and treatment”
The ERNs are building a common training and eLearning strategy Continue reading “The ERNs are building a common training and eLearning strategy”
ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay Continue reading “ERN-RND, ZSE and Solve-RD coordinating offices on #RareDiseaseDay”
Living with ataxia and advocating around the world #RareDiseaseDay Continue reading “Living with ataxia and advocating around the world #RareDiseaseDay”
Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay Continue reading “Working in the BRAIN-TEAM: raising awareness of rare diseases daily #RareDiseaseDay”
Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay Continue reading “Being diagnosed at the centre of rare diseases in Tübingen (ZSE) #RareDiseaseDay”
Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay Continue reading “Pediatric ataxias – the daily work of a clinician in Italy #RareDiseaseDay”
ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment Continue reading “ERN-RND member Pr Boespflug-Tanguy & team find new Leukodystrophies gene and potential treatment”
ERN-RND short fellowship experience in Tübingen, Germany Continue reading “ERN-RND short fellowship experience in Tübingen, Germany”
Full report – 4th European Reference Networks Conference Continue reading “Full report – 4th European Reference Networks Conference”