News 2019 – ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND welcomes new affiliated partners

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New EJP RD call: Networking Support Scheme is open!

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“ERNs in a crucial phase of enlargement”

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ERN Newsletter is out!

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Euro-ataxia publishes patient charter

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EAN 2020 abstract submission is open!

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#BrainLifeGoals photo competition, submit a photograph!

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European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

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100 days to go until Rare Disease Day 2020!

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SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

Call to apply to join an ERN is open until 30 November 2019

Continue reading “Call to apply to join an ERN is open until 30 November 2019”

First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

Continue reading “First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.”

French MSA patient organisation ARAMISE launches fundraising campaign

Continue reading “French MSA patient organisation ARAMISE launches fundraising campaign”

EBC, EFNA & EAN sent joint open letter to EU leaders

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The Ataxia Global Initiatives website is live!

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Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia”

Continue reading “Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia””

Frequently Asked Questions for the ERN call for membership

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Additional documentation available to prepare applications for the 2019 ERN call for membership

Continue reading “Additional documentation available to prepare applications for the 2019 ERN call for membership”

Dystonia Awareness Month

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Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases

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European Commission launches Horizon Europe public consultation

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2019 call for membership to the existing ERNs to open soon

Continue reading “2019 call for membership to the existing ERNs to open soon”

Report – European Academy of Neurology Congress 2019

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Report – ERN-RND Annual Meeting 2019

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MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019

Continue reading “MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019”

Two statements adopted on ERNs integration into the national health systems and cooperation with industry

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First ERN Newsletter published by EU Commission’s DG Health

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EJP-RD survey – please take 5min to complete it

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PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe

Continue reading “PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe”

European Brain Council Election Manifesto

Continue reading “European Brain Council Election Manifesto”