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ERN-RND | European Reference Network on Rare Neurological Diseases

ERN-RND | European Reference Network on Rare Neurological Diseases

for rare or low prevalence complex diseases

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Category: News 2019

ERN-RND welcomes new affiliated partners

ERN-RND welcomes new affiliated partners

Continue reading “ERN-RND welcomes new affiliated partners”

Posted on December 18, 2019August 13, 2024Categories News 2019

New EJP RD call: Networking Support Scheme is open!

New EJP RD call: Networking Support Scheme is open!

Continue reading “New EJP RD call: Networking Support Scheme is open!”

Posted on December 17, 2019August 13, 2024Categories News 2019

“ERNs in a crucial phase of enlargement”

“ERNs in a crucial phase of enlargement”

Continue reading ““ERNs in a crucial phase of enlargement””

Posted on December 6, 2019August 13, 2024Categories News 2019

ERN Newsletter is out!

ERN Newsletter is out!

Continue reading “ERN Newsletter is out!”

Posted on December 5, 2019August 13, 2024Categories News 2019

Euro-ataxia publishes patient charter

Euro-ataxia publishes patient charter

Continue reading “Euro-ataxia publishes patient charter”

Posted on December 4, 2019August 13, 2024Categories News 2019

EAN 2020 abstract submission is open!

EAN 2020 abstract submission is open!

Continue reading “EAN 2020 abstract submission is open!”

Posted on November 29, 2019August 13, 2024Categories News 2019

#BrainLifeGoals photo competition, submit a photograph!

#BrainLifeGoals photo competition, submit a photograph!

Continue reading “#BrainLifeGoals photo competition, submit a photograph!”

Posted on November 22, 2019August 13, 2024Categories News 2019

European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

Continue reading “European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!”

Posted on November 22, 2019August 13, 2024Categories News 2019

100 days to go until Rare Disease Day 2020!

100 days to go until Rare Disease Day 2020!

Continue reading “100 days to go until Rare Disease Day 2020!”

Posted on November 21, 2019August 13, 2024Categories News 2019

SCA Global Conference registration + poster abstract submissions open!

SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

Posted on November 21, 2019August 13, 2024Categories News 2019

Call to apply to join an ERN is open until 30 November 2019

Call to apply to join an ERN is open until 30 November 2019

Continue reading “Call to apply to join an ERN is open until 30 November 2019”

Posted on September 30, 2019August 13, 2024Categories News 2019

First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

Continue reading “First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.”

Posted on September 24, 2019August 13, 2024Categories News 2019

French MSA patient organisation ARAMISE launches fundraising campaign

French MSA patient organisation ARAMISE launches fundraising campaign

Continue reading “French MSA patient organisation ARAMISE launches fundraising campaign”

Posted on September 24, 2019August 13, 2024Categories News 2019

EBC, EFNA & EAN sent joint open letter to EU leaders

EBC, EFNA & EAN sent joint open letter to EU leaders

Continue reading “EBC, EFNA & EAN sent joint open letter to EU leaders”

Posted on September 20, 2019August 13, 2024Categories News 2019

The Ataxia Global Initiatives website is live!

The Ataxia Global Initiatives website is live!

Continue reading “The Ataxia Global Initiatives website is live!”

Posted on September 16, 2019August 13, 2024Categories News 2019

Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia”

Continue reading “Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia””

Posted on September 9, 2019August 13, 2024Categories News 2019

Frequently Asked Questions for the ERN call for membership

Frequently Asked Questions for the ERN call for membership

Continue reading “Frequently Asked Questions for the ERN call for membership”

Posted on September 4, 2019August 13, 2024Categories News 2019

Additional documentation available to prepare applications for the 2019 ERN call for membership

Additional documentation available to prepare applications for the 2019 ERN call for membership

Continue reading “Additional documentation available to prepare applications for the 2019 ERN call for membership”

Posted on September 2, 2019August 13, 2024Categories News 2019

Dystonia Awareness Month

Dystonia Awareness Month

Continue reading “Dystonia Awareness Month”

Posted on September 2, 2019August 13, 2024Categories News 2019

Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases

Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases

Continue reading “Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases”

Posted on August 21, 2019August 13, 2024Categories News 2019

European Commission launches Horizon Europe public consultation

European Commission launches Horizon Europe public consultation

Continue reading “European Commission launches Horizon Europe public consultation”

Posted on August 2, 2019August 13, 2024Categories News 2019

2019 call for membership to the existing ERNs to open soon

2019 call for membership to the existing ERNs to open soon

Continue reading “2019 call for membership to the existing ERNs to open soon”

Posted on July 29, 2019August 13, 2024Categories News 2019

Report – European Academy of Neurology Congress 2019

Report – European Academy of Neurology Congress 2019

Continue reading “Report – European Academy of Neurology Congress 2019”

Posted on July 16, 2019August 13, 2024Categories News 2019

Report – ERN-RND Annual Meeting 2019

Report – ERN-RND Annual Meeting 2019

Continue reading “Report – ERN-RND Annual Meeting 2019”

Posted on July 16, 2019August 13, 2024Categories News 2019

MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019

MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019

Continue reading “MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019”

Posted on July 15, 2019August 13, 2024Categories News 2019

Two statements adopted on ERNs integration into the national health systems and cooperation with industry

Two statements adopted on ERNs integration into the national health systems and cooperation with industry

Continue reading “Two statements adopted on ERNs integration into the national health systems and cooperation with industry”

Posted on July 4, 2019August 13, 2024Categories News 2019

First ERN Newsletter published by EU Commission’s DG Health

First ERN Newsletter published by EU Commission’s DG Health

Continue reading “First ERN Newsletter published by EU Commission’s DG Health”

Posted on July 4, 2019August 13, 2024Categories News 2019

EJP-RD survey – please take 5min to complete it

Continue reading “EJP-RD survey – please take 5min to complete it”

Posted on July 3, 2019August 13, 2024Categories News 2019

PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe

PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe

Continue reading “PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe”

Posted on July 2, 2019August 13, 2024Categories News 2019

European Brain Council Election Manifesto

European Brain Council Election Manifesto

Continue reading “European Brain Council Election Manifesto”

Posted on May 22, 2019August 13, 2024Categories News 2019

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ERN-RND

@ern-rnd.bsky.social

172 Followers 90 Following 219 Posts

European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/

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    ERN-RND @ern-rnd.bsky.social 1 day

    💻 Upcoming #webinar on “Social and Lifestyle Issues Related to Ataxias and HSP”
    📅 13th January, 3:00 CET
    🗣️ Lotte van de Venis, Radboud University Medical Center, Nijmegen and Lori Renna Linton, Euro-HSP

    Sign up 👉https://t1p.de/5nefhttps://t1p.de/5nef2tps://bsky.app/hashtag/webinar">#webinar and
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    ERN-RND @ern-rnd.bsky.social 1 week

    ⚠️Updated time! No#webinarM CET
    💻 Upcoming #webinar on “The Importance of Genetic Counselling in the Diagnostic of Rare Neurological Disorders”
    📅 9th December
    🗣️ Maria Judit Molnar, Semmelweis University, Buhttps://t1p.de/d825h up 👉https://t1p.de/d825h
    Joint with the and
  • Get to this post

    ERN-RND @ern-rnd.bsky.social 1 week

    It's today! Join the live stream here: www.brains4brain.eu/eu-activitie...
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 1 week

    Meet our EPNS Fellows!

    Dr Marie Rohlenová from Czech Rep went to the Raymond Poincaré hospital in Garches, France in 2025

    To read more about Marie's fellowship experience visit - www.epns.info/epns-fellows...

    To join the EPNS visit - www.epns.info/become.../ne...
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    FREE EPNS WEBINAR: CLIMATE CHANGE

    Open to all.
    Wed 18 Feb 2026 5PMCET
    Paediatric Neurology in the Anthropocene: Clinical perspectives in a changing climate

    Register us02web.zoom.us/webinar/register/WN_R7B23GXoRpGwwDBtwYXvig#/registration

    www.epns.info/epns-climate-change-webinar/
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    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    STILL TIME TO REGISTER - Next FREE EPNS Educational Webinar! Wednesday, 10 December 2025, 17:00 CET

    Topic: Approach of an Acute Motor Disorder

    Register at -https://us02web.zoom.us/webinar/register/WN_Do6A224CREOj3_YsZu2QSg
  • Get to this post

    European Paediatric Neurology Society (EPNS) @epnsnews.bsky.social 2 weeks

    Young EPNS (YEPNS) December Highlights in pediatric neurology: Diagnosis of multiple sclerosis!

    #yepns #epns #pediatricneurology #pediatricneurologyliterature #ms #multiplesclerosis

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ERN-RND European Reference Network for Rare Neurological Diseases

Our mission

ERN-RND aims to support rare neurological patients in Europe in getting a timely and appropriate diagnosis, treatment and care.

ERNs

ERN-RND is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. For more information about the ERNs and the EU Health strategy, please visit https://ec.europa.eu/health/ern_en

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