New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research Continue reading “New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research”
Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases Continue reading “Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases”
New #EUProtects video released by the European Commission Continue reading “New #EUProtects video released by the European Commission”
Poster: ERN-RND – Survey research priorities Continue reading “Poster: ERN-RND – Survey research priorities”
Summary report – 4th Conference on European Reference Networks Continue reading “Summary report – 4th Conference on European Reference Networks”
New ERN video and flyer for patients and healthcare professionals Continue reading “New ERN video and flyer for patients and healthcare professionals”
Executive Summary – 9th European Conference on Rare Diseases and Orphan Products Continue reading “Executive Summary – 9th European Conference on Rare Diseases and Orphan Products”
ERN-RND Fellowship experience in Tübingen, Germany Continue reading “ERN-RND Fellowship experience in Tübingen, Germany”
ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016) Continue reading “ERN-RND has affirmed the value of the Ataxia-UK guideline “Management of the ataxias towards best clinical practice” (Ataxia UK, 3rd edition, July 2016)”