Holm Graessner at the Brain Innovation Days 2025

Our coordinator Holm Graessner is participating in the Brain Innovation Days’ Platinum Panel “Advancing Adaptive Pathways and Real-World Evidence for Orphan Drugs” on October 15th, 11:55 CEST.

This session will explore how adaptive pathways and Real-World Evidence (RWE), including patient-experienced data, can be more effectively integrated into policy frameworks to improve access to innovative treatments for rare brain disorders. With patients often facing long delays and limited options, there is a growing need to rethink how we evaluate and approve therapies. In partnership with Merck KGaA Healthcare, this session will bring together stakeholders from across the healthcare ecosystem and aims to identify collaborative, patient-centred policy solutions that accelerate access while ensuring long-term sustainability and equity.

Find the whole programme here.

Annual Meeting 2025 /Scientific Symposium

Welcome to the ERN-RND Annual Meeting 2025 and its Scientific Symposium!

What awaits us?
  • Sunday 26th October 2025, DAY 1: board meeting (only for board members), data access committee meeting, and social event
  • Monday 27th October 2025, DAY 2: disease groups and working groups meetings, and posters session
  • Tuesday 28th October 2025, DAY 3: scientific symposium “European Healthcare for RND patients”
ERN-RND Annual Meeting 2025 in Tutzing

Programme: here

Venue: Schloss Tutzing
Schloßstraße 2+4, 82327 Tutzing

Satisfaction survey: here

Reimbursement form: here

Scientific Symposium “European Healthcare for RND patients”

Programme and brochure: here

To register and join here