ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases
Rare Disease Day is coming up! Join us for shaping the future on policy for Rare Neurological Diseases on February 19, 10-12 CET. Join the meeting with the MEP Interest Group Brain Helath & Neurological Conditions together with our coordinator Holm Graessner as panelist.
Big thanks to the European Federation of Neurological Associations (EFNA) for this invitation! To participate on-site or online please register till February 5: https://www.efna.net/mep-february25/
The European Pediatric Neurology Society (EPNS) and the European Reference Network for Rare Neurological Diseases (ERN-RND) are organizing a Winter School on Challenges of Treating Rare Neurological Diseases.
The school will take place virtually, from 12th to 14th March 2025.
Day 1 Disease Modifying Therapies
Day 2 Movement Disorders
Day 3 Co-morbidities and Cases
Find the programme here.
We are happy to announce that the ERN-RND annual meeting 2025 will be in the Tutzing Castle (close to Munich) in Germany on 27th and 28th October 2025 (the board meeting will be on the 26th October late afternoon).
We expect one representative of each HCP to be present in Tutzing. Additionally, online participation will be open to as many colleagues from ERN-RND as possible.
