European Spinocerebellar Ataxia Type 3/Machado-Joseph Disease Initiative (ESMI) –lay summary of the results of this 4-year Consortium study Continue reading “European Spinocerebellar Ataxia Type 3/Machado-Joseph Disease Initiative (ESMI) –lay summary of the results of this 4-year Consortium study”
8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia” Continue reading “8 September 2020 | ERN-RND webinar “Semantic variant of primary progressive aphasia””
8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course Continue reading “8 September 2020 | 4th EAN Task Force for Rare Neurological Diseases Teaching Course”
1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide” Continue reading “1 December 2020 | ERN-RND webinar “Functional movement disorders: a diagnostic guide””
Research article: “Conversion of individuals at risk for spinocerebellar ataxia types 1, 2, 3, and 6 to manifest ataxia (RISCA): a longitudinal cohort study” Continue reading “Research article: “Conversion of individuals at risk for spinocerebellar ataxia types 1, 2, 3, and 6 to manifest ataxia (RISCA): a longitudinal cohort study””
NEW ePAG patient advocate for Huntington’s disease from Bulgaria Continue reading “NEW ePAG patient advocate for Huntington’s disease from Bulgaria”
Solve-RD Rare Disease Models & Mechanisms Network (RDMM-Europe) Continue reading “Solve-RD Rare Disease Models & Mechanisms Network (RDMM-Europe)”
Jump for Dystonia competition in September Continue reading “Jump for Dystonia competition in September”
David Marsden Award 2021 – open call for submission Continue reading “David Marsden Award 2021 – open call for submission”
SCA & ARCA Global Online Conference 2020 – Abstract submission Continue reading “SCA & ARCA Global Online Conference 2020 – Abstract submission”
Webinars on Leukodystrophies by ELA Deutschland Continue reading “Webinars on Leukodystrophies by ELA Deutschland”
Results of EFNA’s survey on stigma & neurological disorder Continue reading “Results of EFNA’s survey on stigma & neurological disorder”
Share4Rare – new international patient registry for COVID-19 Continue reading “Share4Rare – new international patient registry for COVID-19”
EAN sets up the Ean NEuro-covid ReGistrY (ENERGY) Continue reading “EAN sets up the Ean NEuro-covid ReGistrY (ENERGY)”
#BrainLifeGoals campaign on World Brain Day 2020 Continue reading “#BrainLifeGoals campaign on World Brain Day 2020”
11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience Continue reading “11-15 July 2020 | (Virtual) 12th FENS Forum of Neuroscience”
14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes” Continue reading “14 July 2020 | ERN-RND webinar “Gait rehabilitation in people with Hereditary Spastic Paraplegia & Respiratory physiotherapy in parkinson’s plus syndromes””
NEW ePAG patient advocate for Leukodystrophies from Germany Continue reading “NEW ePAG patient advocate for Leukodystrophies from Germany”
9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia” Continue reading “9 July 2020 | ERN-RND webinar “Environmental modifiers in Hereditary Spastic Paraplegia””
Research article: “COVID‑19 reveals influence of physical activity on symptom severity in hereditary spastic paraplegia” Continue reading “Research article: “COVID‑19 reveals influence of physical activity on symptom severity in hereditary spastic paraplegia””
SCA & ARCA Global online Conference – registration is open Continue reading “SCA & ARCA Global online Conference – registration is open”
30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia” Continue reading “30 June 2020 | ERN-RND webinar “RCT on intrathecal baclofen for dystonia””
30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies” Continue reading “30 June 2020 | EFNA webinar “Where’s Neurology? Influencing Covid Recovery Planning, Programmes and Policies””
EJP RD course “International Summer School on Rare Disease Registries and FAIRification of Data” Continue reading “EJP RD course “International Summer School on Rare Disease Registries and FAIRification of Data””