Author: ERN-RND

Continue reading “The Value of Treatment for Brain Disorders: Case Studies on Rare Diseases & Mental Disorders present findings at  Synthesis Meeting”

Continue reading “ERN-RND webinar on “MRI pattern recognition in leukodystrophies” – MRI upload by participants”

Continue reading “CPMS tutorial video for ERN-RND clinicians now available”

Continue reading “Research article: “Regional Brain and Spinal Cord Volume Loss in Spinocerebellar Ataxia Type 3””

Continue reading “OneNeurology Global Advocacy Workshop 2021”

Continue reading “EJP RD Workshop: Clinical Research with databases: The Basics & Beyond Workshop in clinical epidemiological research for ERNs”

Continue reading “Research article: “A de novo STUB1 variant associated with an early adult‑onset multisystemic ataxia phenotype””

Continue reading “ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias” – recording available”

Continue reading “ERN-RND  webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity” – recording available”

Continue reading “‘Meet the members’ – interview with Sylvia Boesch, University Hospital Innsbruck, Austria”

Continue reading “ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations””

Continue reading “EPNS Congress abstract submission and bursary application OPEN”

Continue reading “ERN-RND communication survey”

Continue reading “Research article: “Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases””

Continue reading “Survey: educational needs in rare neurological diseases in Europe”

Continue reading “FUNDING – EJP RD / ERN Research Mobility Fellowship call open”