The Value of Treatment for Brain Disorders: Case Studies on Rare Diseases & Mental Disorders present findings at Synthesis Meeting Continue reading “The Value of Treatment for Brain Disorders: Case Studies on Rare Diseases & Mental Disorders present findings at Synthesis Meeting”
ERN-RND webinar on “MRI pattern recognition in leukodystrophies” – MRI upload by participants Continue reading “ERN-RND webinar on “MRI pattern recognition in leukodystrophies” – MRI upload by participants”
27-28 May 2021 | ERICA kick-off meeting & first General Assembly Continue reading “27-28 May 2021 | ERICA kick-off meeting & first General Assembly”
CPMS tutorial video for ERN-RND clinicians now available Continue reading “CPMS tutorial video for ERN-RND clinicians now available”
Research article: “Regional Brain and Spinal Cord Volume Loss in Spinocerebellar Ataxia Type 3” Continue reading “Research article: “Regional Brain and Spinal Cord Volume Loss in Spinocerebellar Ataxia Type 3””
OneNeurology Global Advocacy Workshop 2021 Continue reading “OneNeurology Global Advocacy Workshop 2021”
EJP RD Workshop: Clinical Research with databases: The Basics & Beyond Workshop in clinical epidemiological research for ERNs Continue reading “EJP RD Workshop: Clinical Research with databases: The Basics & Beyond Workshop in clinical epidemiological research for ERNs”
18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus) Continue reading “18 May 2021 | ERN-RND webinar “Benign hereditary choreas” (paediatric focus)”
7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations” Continue reading “7 May 2021 | ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations””
4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias” Continue reading “4 May 2021 | ERN-RND webinar “Better Conversations -Communication Partner Training for language led dementias””
Research article: “A de novo STUB1 variant associated with an early adult‑onset multisystemic ataxia phenotype” Continue reading “Research article: “A de novo STUB1 variant associated with an early adult‑onset multisystemic ataxia phenotype””
ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias” – recording available Continue reading “ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias” – recording available”
ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity” – recording available Continue reading “ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity” – recording available”
‘Meet the members’ – interview with Sylvia Boesch, University Hospital Innsbruck, Austria Continue reading “‘Meet the members’ – interview with Sylvia Boesch, University Hospital Innsbruck, Austria”
20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea” Continue reading “20 April 2021 | ERN-RND webinar “Approach to the patient with non-HD chorea””
12-15 April 2021 | International BNA2021 Festival of Neuroscience Continue reading “12-15 April 2021 | International BNA2021 Festival of Neuroscience”
ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations” Continue reading “ERN-RND webinar “Presenting the new CPMS functionalities and the principle of e-consultations””
13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias” Continue reading “13 April 2021 | ERN-RND webinar “MR Biomarkers in Spinocerebellar Ataxias””
EPNS Congress abstract submission and bursary application OPEN Continue reading “EPNS Congress abstract submission and bursary application OPEN”
26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?” Continue reading “26 March 2021 | EHA webinar “GENERATION HD1 – what happened and what does it mean?””
Research article: “Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases” Continue reading “Research article: “Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases””
23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity” Continue reading “23 March 2021 | ERN-RND webinar “Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity””
23 March 2021 | 6ème Journée Nationale BRAIN-TEAM Continue reading “23 March 2021 | 6ème Journée Nationale BRAIN-TEAM”
Article: “European Reference Networks: challenges and opportunities” Continue reading “Article: “European Reference Networks: challenges and opportunities””
Survey: educational needs in rare neurological diseases in Europe Continue reading “Survey: educational needs in rare neurological diseases in Europe”
FUNDING – EJP RD / ERN Research Mobility Fellowship call open Continue reading “FUNDING – EJP RD / ERN Research Mobility Fellowship call open”
13-14 March 2021 | HDYO’s International Young Adult Virtual Congress Continue reading “13-14 March 2021 | HDYO’s International Young Adult Virtual Congress”
EJP RD – ERN Research Mobility Fellowship funding opportunity Continue reading “EJP RD – ERN Research Mobility Fellowship funding opportunity”