Continue reading “18 – 21 May| 34th European Academy Of Childhood Disability (EACD) Annual Meeting”
Author: ERN-RND
28 April-2 May 2022 | 14th European Paediatric Neurology Society Congress
25 – 27 April 2022 | Solve-RD Annual Meeting
Venue: Prague, CZ
Continue reading “25 – 27 April 2022 | Solve-RD Annual Meeting”24 – 27 March 2022 | 16th World Congress on Controversies in Neurology
24 – 25 March 2022 | EPNS VIRTUAL Training Course: Acute Paediatric Neurological Diseases
7 – 9 March 2022 | 2nd Expert Summit on the Future of Deep Brain Stimulation
Publication: “Acute-onset paralytic strabismus in toddlers is important to consider as a potential early sign of late-infantile Metachromatic Leukodystrophy”
22 February 2022 | EPNS Case Discussion: Neuromodulation in Dystonia
Publication from the European Metachromatic Leukodystrophy initiative (MLDi)
9 February 2022 | EJPRD- ERICA Joint Workshop “Finding RD registry data in the Virtual Platform”
Publication: “Therapy Trial Design in Vanishing White Matter – An Expert Consortium Opinion”
8 February 2022 | EURORDIS Black Pearl Award Event
4 – 5 March 2022 | EJP RD workshop: Contemporary outcome measures in NeuroMuscular diseases
United Nations adopts Resolution on persons with rare diseases
33 new ERN-RND members!
9 – 11 December 2021 | Workshop: The Future of Medical Data Sharing in Clinical Neurosciences
Digital meeting
HBP, EBRAINS and the EAN invite the entire scientific community to join this workshop on the Future of Medical Data Sharing in Neuroscience.
