Continue reading “Full report – 4th European Reference Networks Conference”
Author: ERN-RND
New European Joint Programme on Rare Diseases – €100 million allocated to rare disease research
Poster – Diagnostic flowcharts, a tool to disseminate expert knowledge on rare neurological diseases
New #EUProtects video released by the European Commission
Poster: “CPMS use cases in ERN-RND”
30 Nov – 1 Dec | from Genome to Precision Medicine in Pediatric Movement Disorders
Course name:
from Genome to Precision Medicine in Pediatric Movement Disorders
Date: 30 November – 1 December 2018
Venue: Barcelona, Spain
Organized by:
Pediatric Neurology Section, Vall d’Hebron University Hospital
Website:
http://www.aulavhebron.net/aula/index.php?go=proximos_cursos
Poster: ERN-RND – Survey research priorities
Summary report – 4th Conference on European Reference Networks
New ERN video and flyer for patients and healthcare professionals
21 – 23 November | German Academy for Rare Neurological Diseases Annual meeting
22 – 23 November | Movement Disorders in Children and Young Adults
Course name: Movement Disorders in Children and Young Adults course
Date: 22 – 23 November 2018
Venue: University Medical Centre Groningen, Netherlands
Please find more information about the course on the MDS website.
21-22 November | 4th Conference on European Reference Networks
The 4th Conference on European Reference Networks is taking place on the 21-22 November 2018 in Brussels, Belgium.
European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe and were first launched in March 2017. 24 ERNs are now operational.
Gathering more than 400 participants, the main objectives of the conference will be to:
- Mark that ERNs are entering the next stage of their lifecycle: the deployment phase.
- Present the main clinical and organisational outcomes and success stories of the networks and consider the lessons learned.
- Identify the main challenges, potential improvements and opportunities for the functioning and management of the networks and the way forward for the future of the ERN system.
ERN-RND members and ePAG representatives will attend.
For more information, please visit the European Commission’s webpage.
20 November, 14h | CPMS Webinar
Name: CPMS for new users: Authorisation – Authentication – First login
Date: 20 November, 14h
Join the webinar here
