Continue reading “The Ataxia Global Initiatives website is live!”
Author: ERN-RND
Research News: “A clinical diagnostic algorithm for early onset cerebellar ataxia”
Frequently Asked Questions for the ERN call for membership
Additional documentation available to prepare applications for the 2019 ERN call for membership
Dystonia Awareness Month
Interview with Daria Julkowska, coordinator of the European Joint Programme on Rare Diseases
European Commission launches Horizon Europe public consultation
2019 call for membership to the existing ERNs to open soon
22 July 2019 | World Brain Day
Report – European Academy of Neurology Congress 2019
Report – ERN-RND Annual Meeting 2019
MSA Trust is accepting new and innovative project grant applications for Research Grant Round 2019
10-12 July | 3rd EAN Task Force for Rare Neurological Diseases Teaching Course
Two statements adopted on ERNs integration into the national health systems and cooperation with industry
First ERN Newsletter published by EU Commission’s DG Health
EJP-RD survey – please take 5min to complete it
29 June – 2 July 2019 | 5th Congress of the European Academy of Neurology
PETITION – Call for increased emphasis on brain research in the strategic plan for Horizon Europe
29 June 2019 | Dystonia Today – special session at the EAN Congress 2019
29 June | Rare Neurological Diseases for Understanding nervous system functions & dysfunctions, 5th Congress of the EAN 2019
26 June | EJP-RD WP17 focus group meeting
17 – 19 June | ERN-RND Annual Meeting 2019
The ERN-RND Annual Meeting is taking place in Siena, Italy on the 17-19 June 2019. The coordinating members, clinicians and researchers from ERN-RND expert centres across Europe, ePAG patient representatives and industry representatives will attend.
Please find the full meeting agenda here.
Monday 17 June:
- Scientific symposium
- Poster session
- ePAG representatives meeting
Tuesday 18 June:
Annual meeting
- ERN-RND overview
- CPMS live case discussion
- CPMS hands-on sessions
- Results, work for years 3-5 & brainstorming for next 5 years
- Disease group sessions Frontotemporal Dementia, Choreas & Huntington’s Disease, Atypical Parkinsonian Syndromes, Leukodystrophies, Dystonias/Paroxysmal Disorders (non-epiletical ones)/Neurodegeneration with Brain Iron Accumulation, Cerebellar Ataxias & Hereditary Spastic Paraplegias
Wednesday 19 June:
Board meeting
12 June 2019 | IMI Stakeholder Forum 2019
May 2019 | Huntington’s Disease Awareness Month
May is Huntington’s Disease Awareness Month.
Raise awareness by lighting up your home, sharing pictures and stories on social media. You can use the hashtag #LightItUp4HD .
You can find more information on the European Huntington Association webpage’s here.
