ERN-RND – Page 13 – ERN-RND | European Reference Network on Rare Neurological Diseases

Euro-ataxia publishes patient charter

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3 December | ERN-RND webinar “Neuroacanthocytosis syndromes, a rare chorea”

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27-29 November | Annual Meeting DASNE

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EAN 2020 abstract submission is open!

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26 November | 5th BRAIN-TEAM patient organisations day

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#BrainLifeGoals photo competition, submit a photograph!

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European Conference on Rare Diseases & Orphan Products 2020, submit your poster abstract!

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100 days to go until Rare Disease Day 2020!

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SCA Global Conference registration + poster abstract submissions open!

Continue reading “SCA Global Conference registration + poster abstract submissions open!”

14-16 November | International Ataxia Research Conference (IARC) 2019

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5 November | ERN-RND webinar “Clinical Features of Ataxia”

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29-30 October | Organising & maximizing rare disease biological sample data in biobanks

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23-25 October | Training course: Quality assurance, variant interpretation and data management in the NGS diagnostics era

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24 October | WEBINAR: “CPMS upcoming changes”

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24 October | WEBINAR: “Diagnostic imaging in NMD: the basics”

Continue reading “24 October | WEBINAR: “Diagnostic imaging in NMD: the basics””

3-4 October | 8th Annual Symposium on ATP1A3 in Disease

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3 October | World MSA Day

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Dystonia Awareness Month | September 2019

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30 September | EU Health Programme High Level Conference

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Call to apply to join an ERN is open until 30 November 2019

Continue reading “Call to apply to join an ERN is open until 30 November 2019”

26-27 September | Nationale Konferenz zu Seltenen Erkrankungen (NAKSE)

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23-27 September | International Summer School on Rare Disease Registries and FAIRification of Data

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22-26 September | International Congress of Parkinson’s Disease & Movement Disorders

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25 September | International Ataxia Awareness Day

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First call for new members to join existing 24 ERNs to be launched on 30 Sept. until 30 Nov.

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French MSA patient organisation ARAMISE launches fundraising campaign

Continue reading “French MSA patient organisation ARAMISE launches fundraising campaign”

17-21 September | 13th European Paediatric Neurology Society (EPNS) Congress

Continue reading “17-21 September | 13th European Paediatric Neurology Society (EPNS) Congress”

20-21 September | 6th International Meeting on Spastic Paraparesis and Ataxia

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EBC, EFNA & EAN sent joint open letter to EU leaders

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16 September | Rare disease perspectives in Central – Eastern Europe

Continue reading “16 September | Rare disease perspectives in Central – Eastern Europe”