Author: ERN-RND

Continue reading “Research article: “Teaching Video NeuroImages: Palatal tremor associated with SPG7 variants””

Continue reading “ERN Newsletter – April 2020”

Continue reading “Rare Barometer survey on rare disease patients’ experience of COVID-19”

Continue reading “Research article: “Longitudinal dynamics of mutant huntingtin and neurofilament light in Huntington’s disease: the prospective HD-CSF study””

Continue reading “Research article: “Driving Performance in Patients With Idiopathic Cervical Dystonia; A Driving Simulator Pilot Study””

Continue reading “EAN Movement Disorders Scientific Panel recommendations for COVID-19 pandemic”

Continue reading “Dystonia, patient advocacy and the future by Monika Benson”

Continue reading “Recording of webinar on Huntington’s disease & COVID-19 available”

Continue reading “Guidelines on EU Emergency Assistance in Cross-border Cooperation in Healthcare”

Continue reading “Solve-RD brokerage call open”

Continue reading “COVID-19: EURORDIS urges immediate action and proposes concrete solutions for rare disease patients”

Continue reading “Webinar on 6 April: “Huntington’s Disease & COVID-19 pandemic – a difficult combination””

Continue reading “European Commission launches COVID-19 Clinical Management Support System”

Continue reading “EAN Congress 2020 moves online”

Continue reading “ECRD 2020 moves online”

Continue reading “EFNA launches survey on stigma & neurological conditions”

Continue reading “It’s #BrainAwarenessWeek 2020”