The recording of the Virtual Roundtable organised by the European Federation of Neurological Associations (EFNA) and the European Huntington Association (EHA) on how to ensure better access to care, services and treatment for all people affected by Huntington’s Disease and Rare Neurological Diseases is available!
As a result of this event that took place on 3 December, a consensus statement will be written to ouline the challenges faced by the HD community and policy recommendations will be made.
We are very pleased to have had ERN-RND coordinator Holm Graessner take part in this important discussion together with representatives of the European Huntington’s Disease Network (EHDN), the European Brain Council (EBC), the European Organisation for Rare Diseases (EURORDIS), and Members of the European Parliament.
Click here to view the recording.