Please note that this section includes useful information from a variety of sources provided by ERN-RND members but which hasn’t been endorsed by ERN-RND.
Disease specific patient education handouts by the Movement Disorders Society
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- What is ataxia? by Ataxia UK
- Living with Friedreich’s Ataxia by FARA
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- What is Friedreich’s Ataxia? by L’Association Française de l’Ataxie de Friedreich (AFAF)
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- Der HSP-Ratgeber by HSP Selbsthilfegruppe Deutschland e.V.
- Ataxie by Deutsche Heredo-Ataxie-Gesellschaft e.V.
- What is Friedreich’s Ataxia? by Friedreich Ataxie Förderverein e.V. (FAFVeV)
- What is Friedreich’s Ataxia? by Association suisse de l’Ataxie de Friedreich
- What is Friedreich’s Ataxia? by Associazione Italiana per la lotta alle Sindromi Atassiche (A.I.S.A.)
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- What is Ataxia? by Federación de Ataxias de España (FEDAES)
- What is Friedreich’s Ataxia? by MedlinePlus