Webinars

Disease-Specific
Neuro­reha­bilitation
Advanced Therapies
Paediatric
Clinical Studies
Deep Brain Stimulation

ERN-RND webinars in collaboration with ERN EURO-NMD and EAN

ERN-RND provides free educational webinars on rare neurological and neuromuscular diseases - in collaboration with the European Reference Network for Rare Neuromuscular Diseases (EURO-NMD) and the European Academy of Neurology (EAN). The goal is to share knowledge on rare neurological, movement and neuromuscular disorders via a series of webinars presented by expert members of both networks.

Topics: The webinars will treat topics related to the disease groups covered by the two networks and alternate between adult and paediatric contents. Various aspects from more general  clinical features, examination, disease diagnosis, medical interventions and disease management to more specific ones as use of scales or imaging will be discussed.

Audience: clinical specialists (neurologists and paediatric neurologists), residents and other paramedical staff involved in the care of neurological patients.

Recorded webinars:  The webinars are usually recorded and published on the "past webinars" webpage 2 weeks approximately after it took place. However, please consider that in the recorded webinar some features are missing and thus the live experience of these educational events is highly recommended.

 

Registration: In order to register for a specific webinar click on the webinar of your choice in the table below. The registration links will be active as soon as possible and at the latest 2 weeks before the webinar's date.

Next webinar organised by ERN-RND will be on:

Date Topic Speaker Institution ERN Focus
06 -May 2025,
3 - 4 pm CEST
Palliative Care in Chorea and Huntington's Disease Jean-Marc Burgunder University of Bern, Switzerland, Neurology Clinic ERN-RND
08 -May 2025,
4 - 5 pm CEST
FSHD webinar series – Episode 1: Genetic Diagnosis Emiliano Giardina University of Rome Tor Vergata, Italy EURO-NMD
13 May 2025,
3 - 4 pm CEST
Neurogeriatric Aspects in Rare Forms of Ataxia and HSP: Later on Clinical Manifestations and Secondary Symptoms Eleni Zamba-Papanicolaou Cyprus Institute of Neurology and Genetics, Cyprus ERN-RND
15 May 2025,
4 - 5 pm CEST
FSHD webinar series – Episode 2: International Clinical Care Guidelines Teresinha Evangelista Institute of Myology & Pitié Salpêtrière Hospital – AP-HP, Paris, France EURO-NMD
20 May 2025,
3 - 4 pm CEST
Recent Advances in Clinical Trials in Multiple System Atrophy David Bendetowicz CHU - Reference Center for Rare Multiple System Atrophy, University Hospital Bordeaux, France ERN-RND
28 May 2025,
4 - 5 pm CEST
FSHD webinar series – Episode 4: Clinical Trial Readiness Nicol Voermans & Ria de Haas Radboud University Nijmegen Medical Centre, the Netherlands EURO-NMD

Webinars from partner professional organisations

Webinars from other organisations

All past webinars of ERN-RND partner organisations (including patient organisations) can be found here.

Please note that ERN-RND is not responsible for the content provided via external links and has no control over them.