- Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay foundation (ARSCAS Canada)
- Ataxia Study Group
- Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE) Clinical Ataxia Network
- Friedreich’s Ataxia Research Alliance USA
- Paediatric Ataxia and Cerebellar Disorders Association
- SCA Global (spinocerebellar ataxias)
- SPATAX (cerebellar ataxias and spastic paraplegias)