The ERN-RND is involved in the following projects.
JARDIN Joint Action
The JARDIN project is a Joint Action co-funded by the European Union. It aims to integrate European Reference Networks (ERNs) into National Healthcare Systems and built a bridge between the both. JARDIN’s mission and vision are based on “Integration, equity and sustainability”.
On a bigger scale, the vision is to put people living with rare diseases or complex conditions at the centre of care, and aims to make the care pathway clear and easily accessible.
More information about the project, it's activities and associated members can be found on the JARDIN webpage
European Rare Disease Research Alliance (ERDERA)
To leave no one behind, over 170 organisations championed by the European Union and members states are working hand in hand to make Europe a world leader in rare diseases research and innovation. The European Rare Disease Research Alliance (ERDERA) takes over EJPRD to deliver concrete health benefits to rare disease patients in the next decade by advancing prevention, diagnosis and treatment research.
Find out more on the ERDERA Webpage
Metachromatic Leukodystrophy initiative (MLDi)
The MLD initiative (MLDi) is a European disease registry for metachromatic leukodystrophy (MLD) and a multi-stakeholder collaboration.
The MLD initiative collects patient data for research and healthcare purposes, and initiates, coordinates, and manages various projects focused on improving the care for MLD.
Find out more about the initiative on the MLDi Webpage