European Joint Programme on Rare Diseases (EJP-RD)
The European Joint Programme on Rare Diseases (EJP-RD) has been closed in August 2024 after persistance of more than five years.
A description of it's goals, ERN contribution and methodologies can be found on our webpage "EJP-RD". The webpage highlights the subjects
And a comprehensive overview of the programme and its outcomes can be found here
Solving the unsolved Rare Diseases (Solve-RD)
The Solving the unsolved Rare Diseases (Solve-RD) project has been closed in March 2024 after more than six years.
A summary of its goals, collaborating institutions and methodologies can be found on our webpage "Sovle-RD", which highlights the subjects:
And a comprehensive overview of the programme and its outcomes can be found here
Value of Treatment (VoT)
The European Brain Council (EBC) is a network of key players in the “Brain Area”, with a membership encompassing scientific societies, patient organisations, professional societies and industry partners.
The Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council (EBC). According to the World Health Organization, disorders of the brain affect up to one in three people worldwide. EBC conceptualised in 2015 the Value of Treatment research framework with a first VOT study to address current unmet needs in healthcare and the increasing all-age burden of brain disorders – both neurological and mental alike.
A summary of its goals, collaborating institutions and methodologies can be found on our webpage "Value of Treatment project", which highlights the subjects: