Webinars
You can find information on educational webinars organized by ERN-RND and our partner organisations here.
other Events
- Conference: Towards an EU Action Plan on Rare Diseases
What is the use of Patient Registries? And how does data sharing in the ERNs work? Our coordinator Holm Graessner … Continue reading “Conference: Towards an EU Action Plan on Rare Diseases” - Meeting with MEPs for Rare Disease Day
Rare Disease Day is coming up! Join us for shaping the future on policy for Rare Neurological Diseases on February … Continue reading “Meeting with MEPs for Rare Disease Day” - 6th ERN-RND Winter School
The European Pediatric Neurology Society (EPNS) and the European Reference Network for Rare Neurological Diseases (ERN-RND) are organizing a Winter … Continue reading “6th ERN-RND Winter School” - Annual Meeting 2025
We are happy to announce that the ERN-RND annual meeting 2025 will be in the Tutzing Castle (close to Munich) … Continue reading “Annual Meeting 2025”
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latest News
- Survey on Myoclonus Dystonia Syndrome
- The Importance of Newborn Screening for Metachromatic Leukodystrophy (MLD)
- Conference: Towards an EU Action Plan on Rare Diseases
- Interview: “de neuroloog” with Holm Graessner about the neurological ERNs
- MEP Meeting on Brain Health and Neurological Conditions
- Solve-RD: Interview with coordinator Holm Graessner
- Holm Graessner becomes Lancet Commissioner
- Meeting with MEPs for Rare Disease Day
- ERN-RND now on BlueSky!
- NGS: European Quality Assessment for ERN-RND centers