- Annual Meeting 2025
We are happy to announce that the ERN-RND annual meeting 2025 will be in the Tutzing Castle (close to Munich) … Continue reading “Annual Meeting 2025” - New Study on MLD
The combination of newborn screening, care pathway and respective therapies led to a major breakthrough for rare diseases in this … Continue reading “New Study on MLD” - Our Patient Journeys at EURORDIS Podcast “ERNs on Air”
Patient Journeys are practical quick overviews that guide you through the stages of a rare neurological disease. But do you … Continue reading “Our Patient Journeys at EURORDIS Podcast “ERNs on Air”” - 100th ERN-RND Webinar!
We are happy to announce that our 100th webinar on rare neurological diseases will be held tomorrow at 15 CEST … Continue reading “100th ERN-RND Webinar!” - EAN 2024: Come and visit us!
We are looking forward to meeting you at this year’s EAN Congress: come and visit us at our booth N27 … Continue reading “EAN 2024: Come and visit us!” - Recordings of ERN-RND Spring School 2024 online
If you missed a session of our Spring School “DBS in Dystonia” you can now watch it online. The following … Continue reading “Recordings of ERN-RND Spring School 2024 online” - New Publication on NGS for RND
Read now our newly published paper on “Quality assurance for next-generation sequencing diagnostics of rare neurological diseases in the European … Continue reading “New Publication on NGS for RND” - The ERN-RND ePAG visits the Medical University Innsbruck
“Getting coordinated care is not a pipe-dream. It is a reality in Innsbruck and can be a reality in other … Continue reading “The ERN-RND ePAG visits the Medical University Innsbruck” - ERN-RND Spring School 2024Our 5th Winter School will be a Spring School this year and will focus on Deep Brain Stimulation in Dystonia. … Continue reading “ERN-RND Spring School 2024”
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ERN-RND | European Reference Network on Rare Neurological Diseases
for rare or low prevalence complex diseases