Event: Round table – providing better access to care and treatment for HD & RND patients
Date: 3 December 2020, 14h-16h CET
Venue: Online
The roundtable discussion will bring together a variety of stakeholders to highlight the sense of urgency required to ensure better access to care, services and treatment for all patients affected by Huntington’s Disease and
other Rare Neurological Diseases.
Representatives of the European Huntington’s Disease Network, our network coordinator Holm Graessner, the European Brain Council, EURORDIS, and Members of the European Parliament
will come together to discuss how they understand the challenges and unmet needs Huntington Disease patients face and how together we can ensure better access to care and treatment for all.
Some of the questions we will address include:
- WHAT ARE THE MAIN CHALLENGES?
- WHERE ARE THE OPPORTUNITIES?
- WHAT EU POLICIES CAN BE MADE TO MOVE US FORWARD?
Join us to contribute your own perspective and gain greater insight into the challenges faced across the Rare Neurological Disease field.